The lives of Augie and Lynne Nieto will be the subject of a documentary that began filming last week, according to the Nietos.
"We have decided to start filming a documentary on our journey with ALS and our quest to find a cure," Augie wrote. Actor and director James Keach will direct the documentary through his company PCH Films.
Augie, who is co-founder of Life Fitness and chairman of Octane Fitness, Augie's Quest and ALS Therapy Development Institute, was diagnosed with amyotrophic lateral sclerosis (ALS) in 2005 at the age of 47. The Nietos founded Augie's Quest in 2005 to raise funds to find a cure for ALS. Augie's Quest is now the fundraising arm of the ALS Therapy Development Institute.
Filming started Saturday at Augie's Quest's Tradition of Hope Gala in Beverly Hills and will continue for six months. Lynne said the filming may occur at the Bash for Augie's Quest to be held at the IHRSA conference March 21-24, 2016, in Orlando. Lynne was at the Club Industry Show last Thursday to accept Club Industry's Lifetime Achievement Award for Augie, who was unable to attend in person due to the difficulty of travel.
Lynne called being filmed "a little weird," but so far it has not been too intrusive.
"There was so much going on at the Gala that it probably wasn’t as noticeable as it will be here at our home," she said.
The Nietos said they hope the documentary will help raise funding for ALS research.
"At the very least, we would like it to build additional awareness for this ‘orphan disease,’" she said. "We would also hope that it will give hope to others suffering with this horrific disease."
PCH Films recently produced for CNN the documentary "Glen Campbell – I'll Be Me." That film, which originally aired in June, was about country singer Glen Campbell and his battle with Alzheimer's disease.
"It was very moving and incredibly well done," Augie wrote. The Campbell documentary was the most watched CNN Films broadcast in the franchise's history, according to Deadline.com. The documentary had 2.76 million viewers on its premiere broadcast.
An air date and outlet for the Nieto film has yet to be announced. Keach, who approached the Nietos about doing the film, is an Emmy-nominated director and is the son of actor Stacy Keach Sr. and brother of actor Stacy Keach Jr.
PCH Films was founded by Keach, actress Jane Seymour (formerly married to Keach) and Trevor Albert in 2007, according to the company's website. The company's films include "Walk the Line," "Groundhog Day," "Dr. Quinn Medicine Woman" and others.